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W07VH5 |
Marky was at 150/81 before lunch and he's at 149/88 now. Much more stable and very encouraging. | |||
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| W07VH5 |
Marky got moved out of ICU and into a regular room this afternoon. I got a call from Renal that said they are planning to discharge him tomorrow. Now we have to learn about his 4 or 5 new medications and how to dose them. | |||
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אַרְיֵה |
Thanks for the updates. Marky (and the whole 123 family) have many well-wishers here. We are hoping for continued good news. הרחפת שלי מלאה בצלופחים | |||
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| W07VH5 |
Planning to bring Marky home today we decided to call off Friday and spend the night in Pittsburgh. Unfortunately, his blood pressure is still not under control. It's been too high all night. The drive was really putting a hurting on our bodies so it's probably good that we stayed. I'm just very disappointed. | |||
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| W07VH5 |
Well, looks like my disappointment was unfounded. They are processing his discharge. Whew. What a ride. | |||
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| Member |
I can't imagine how stressful it feels to you. If possible, try to relax whenever possible. It can be understandably overwhelming. My thoughts and prayers are with you, your son and your loved ones. *************************** Knowing more by accident than on purpose. | |||
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| W07VH5 |
The real stress has just begun. He's got 6 new medications that have to be given at proper tines and we have to check BP a lot. It sure feels like too many pills but we've gone over the dosing about 100 times. Still nervous about doing something wrong or missing something important. | |||
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| Member |
Set up notifications on your phone. I think one of the Sig Forum members who sells medical equipment had a pill tray with electronic reminders. Hope that helps. | |||
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| W07VH5 |
I'll see what I can find. Marky's blood pressure was high at dinner time last night which made him need the as-needed meds which made me super nervous because they were having so much trouble controlling it at Children's. Again unfounded. It seems his BP had been a steady 130-142 over 80 all night. I'm guessing because they lowered his daily prednisone dose and it's finally dropping in his system. | |||
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| אַרְיֵה |
That's downtownv. His email address is in his profile. הרחפת שלי מלאה בצלופחים | |||
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| Member |
in home nurses will recommend two , three or four different looking 7 day pill boxes. different colors and shapes, this helps to NOT mixing them up. and when you are filling them up at the end of the week, fill them on a cookie sheet. that way when your pill misses the container , you hear it drop on the tray. example : you always use the red square one , first thing in the morning, the blue elongated one is for lunch and the yellow round one is for supper. Safety, Situational Awareness and proficiency. Neck Ties, Hats and ammo brass, Never ,ever touch'em w/o asking first | |||
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| Member |
Medisafe Pill Reminder and Medication Tracker is an app for reminders to take meds, and it gets really good reviews. (I do not use it personally, but thought I would do a little digging for you). | |||
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Sound and Fury |
Mark, Been off the forum and hadn't seen this. Started reading at the beginning, but had to skip to the end. Glad Marky is improving and home. Sending prayers for continued healing. When we had a bunch of pills to give at various times, one of these was helpful, along with phone alarms for the designated times. https://www.amazon.com/7-Day-M...t-Time/dp/B00893GUIG "I've spoken of the shining city all my political life, but I don't know if I ever quite communicated what I saw when I said it. But in my mind it was a tall proud city built on rocks stronger than oceans, wind-swept, God-blessed, and teeming with people of all kinds living in harmony and peace, a city with free ports that hummed with commerce and creativity, and if there had to be city walls, the walls had doors and the doors were open to anyone with the will and the heart to get here." -- Ronald Reagan, Farewell Address, Jan. 11, 1989 Si vis pacem para bellum There are none so blind as those who refuse to see. Feeding Trolls Since 1995 | |||
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| Member |
Definitely an improvement.  *************************** Knowing more by accident than on purpose. | |||
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| W07VH5 |
Marky had his routine biweekly blood test and it found he has critically low sodium. We're back at the local ER. :sigh: | |||
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| W07VH5 |
Preparations are being made to transport him back to Children's Hospital in Pittsburgh. | |||
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Member |
I'm praying that the docs figure out what's going on. | |||
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Member |
Mark, Praying for you and your son. Hope the docs can get everything figured out and get you guys back to "normal". | |||
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| W07VH5 |
Marky came home last night. He's doing much better. He was on a low-sodium diet and two medications that deplete sodium. He's off of both of those meds and off of sodium restriction. He's now on a liquid restriction which seems counterintuitive. | |||
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| Member |
How's your son doing, mark123? *************************** Knowing more by accident than on purpose. | |||
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