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My child can’t get a continuous glucose monitor prescription but a dog can??? Login/Join 
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Picture of spunk639
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A question to pose would be when my child becomes so hypoglycemic that his glucose Ml/dl is in the teens and is intubated and requires an ICU admission or god forbid has lasting neuro deficits who should I name as defendants for not prescribing a device that reasonably could’ve prevented the issue. Hypoglycemia if not properly treated or detected has dire and serious consequences. When I worked EMS witnessed it first hand even in pediatric patients.
 
Posts: 2860 | Location: Boston, Mass | Registered: December 02, 2000Reply With QuoteReport This Post
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Picture of Patriot
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It may be about licensing and how a CGM is registered with the FDA.

If hypoglycemia was not on the listing, well, then that’s the issue.

It’s like when a pill has side effects that help another issue. It can’t be prescribed unless it is relisted/submitted for that ailment and must go through all the testing again.


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Posts: 7082 | Location: South East, Pa | Registered: July 04, 2002Reply With QuoteReport This Post
Thank you
Very little
Picture of HRK
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quote:
It may be about licensing and how a CGM is registered with the FDA.


Which is all the more reason to contact the manufacturer and find out for sure... it may not be certified for the use you want. Seems though, if you're using a finger prick to check sugar, logically you'd think this would help.

Contact Info Link
 
Posts: 24510 | Location: Gunshine State | Registered: November 07, 2008Reply With QuoteReport This Post
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Picture of Black92LX
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quote:
Originally posted by HRK:
quote:
It may be about licensing and how a CGM is registered with the FDA.


Which is all the more reason to contact the manufacturer and find out for sure... it may not be certified for the use you want. Seems though, if you're using a finger prick to check sugar, logically you'd think this would help.

Contact Info Link


We have been in contact with them directly which is how we got some in the 1st place.
We also were able to get ahold of a Dexcom I think but we preferred the Libre.
Unfortunately neither were able to provide a way to get a consistent or further supply.

Though we were contacted today and we may have a temporary supply as we continue to work towards something solid.


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Posts: 25773 | Registered: September 06, 2003Reply With QuoteReport This Post
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So we were contacted yesterday about a temporary supply so that is a good thing.

Well today we got a call from the out of state endo clinic asking if we would be interested in trying a continuous glucose monitor?

We just said yes of course.
Still very confused why when we specifically asked for it a couple months back when we had him admitted to do the 24 hour fast we were told they would not be able to do it.
Ohh we’ll take what you can get.
Sounds like no insurance coverage but I think they are like $65 a pod so we can deal with $130 a month.


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The world's not perfect, but it's not that bad.
If we got each other, and that's all we have.
I will be your brother, and I'll hold your hand.
You should know I'll be there for you!
 
Posts: 25773 | Registered: September 06, 2003Reply With QuoteReport This Post
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Picture of .38supersig
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That's good to hear.



 
Posts: 9453 | Location: Somewhere looking for ammo that nobody has at a place I haven't been to for a pistol I couldn't live without... | Registered: December 02, 2014Reply With QuoteReport This Post
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quote:
Originally posted by Black92LX:
So we were contacted yesterday about a temporary supply so that is a good thing.

Well today we got a call from the out of state endo clinic asking if we would be interested in trying a continuous glucose monitor?

We just said yes of course.
Still very confused why when we specifically asked for it a couple months back when we had him admitted to do the 24 hour fast we were told they would not be able to do it.
Ohh we’ll take what you can get.
Sounds like no insurance coverage but I think they are like $65 a pod so we can deal with $130 a month.


If your work offers a FSA, get one. It softens the blow on things like this.
 
Posts: 7163 | Registered: April 02, 2011Reply With QuoteReport This Post
The success of a solution usually depends upon your point of view
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quote:
Originally posted by Black92LX:
Sounds like no insurance coverage but I think they are like $65 a pod so we can deal with $130 a month.


Glad to hear you are getting this resolved the way you want it.

I get my CGM through a Wal-Mart pharmacy instead of my regular pharmacy. Since I also pay out of pocket I called around to find out who had the best price. The Wal-Mart pharmacy went on-line and found a discount code and applied it to my prescription. This has me paying around $68 for 2 monitors. When I get my new prescription written each year they have found a new code and applied it again.

It may be worth checking around.



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Posts: 3926 | Location: Jacksonville, FL | Registered: September 10, 2010Reply With QuoteReport This Post
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Picture of 92fstech
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Glad to hear that! Hopefully it helps you get everything squared away so that eventually he can get off of it altogether, but in the meantime I think it will really help. And yeah, what SpinZone said about the discount code....look into that. Even after insurance it has helped me out quite a bit. My CVS pharmacy set it all up for me, but I had to put them in touch with the abbott people.
 
Posts: 9447 | Location: In the Cornfields | Registered: May 25, 2006Reply With QuoteReport This Post
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