Damn Johnny. Hang in there. Seems advances in treatment occur every month.

When I got my diagnosis I was told had I got my cancer a decade earlier, it would have been a death sentence with maybe a couple years at most to contemplate things. I'm still kicking now 7 years into this crap. Granted there's side effects but no one said treatment was a free lunch.

Sending a prayer for you…

Hang in there, Johnny. Prayers offered up.

Best wishes, and good luck.

Praying for the best for you. In the event that you end up having to get dialysis, find a dialysis unit with really caring RN, technician and dietician. My wife is a Dialysis RN for 25 years now. Having a team that truly care makes a HUGE difference. First step though is to get a good Nephrologist. Read professional reviews if there are any. Ask all the questions you may have, and ask all available treatment options.

Johnny, praying for you, hang in there, if you can travel MGH in Boston is one of the top Nephrology centers in the world.

Prayers for peace and strength for you sir.

I've had a Nephrologist for several years now. My kidney function is in the 40-50% range and slowly improving. The doc has me on several medications beyond what my GP has prescribed for me, and apparently they are helping.

The first thing he and my GP did was to take me off Metformin (a Diabetic medicine) because it was damaging my kidneys. He confirmed my need for furosemide ("Lasix") and supplemented it with Metolazone--both to control swelling in my legs and reduce the load on the kidneys. Recently he has also prescribed Allopurinol because my Uric Acid levels were getting high. (My GP had prescribed it years ago for a while for the same reason, but the need for it subsided.) For a while the Nephrologist also prescribed Losartan, but it was interfering with some other meds and was stopped.

All this is to say that a Nephrologist can do a lot to remedy problems with your kidneys. You need to see one regularly if you are at Stage IV. (I may have at one time been at that level, but treatment has improved my condition a lot.)

Keep fighting and get regular appointments with a Nephrologist.

flashguy

Hang in there bud!!!! Prayers out.

J3, you have my prayers and best wishes.

Prayers sent.

I got down to around 54 before I was diagnosed. It is believed popping ibuprofen like candy is what did it to me. I stopped ibuprofen 100%, and I only use acetaminophen now.

My nephrologist's very basic kidney health tips are: limit salt, don't get dehydrated/drink a lot of water, don't hold your urine, and don't do a lot of caffeine.

Good luck! Hope you get help very soon!

Prayers said for you, sir!

Prayers for you. Medicine has made great advances and continues to do so.

Best of luck to you and prayers said and sent.

Best of luck to you!

Sure hope you can get an earlier appointment.

J3, my friend, this is most unfortunate news. Don't fret though, you have options.

Quickly I checked Nephrologist at Emory Healthcare here in Atlanta. Emory If you click on that link, you'll see dozens of Nephrologists. At least one has availability to see new patients inside of 30 days. And, although not good, is a lot better than 180.

I can assist with transportation and lodging as needed.

Mike

Sorry to hear of your diagnosis and the long delay for treatment but am praying for you that things work out so you can get treated sooner and be on the way to recovery.

One update, I have a Renal Ultrasound tomorrow. Maybe things will move faster.

Thanks for sharing the good news, J3E!