Anyone with experience with this.

My niece who is ten was recently diagnosed with this. The options are scary. The meds she is now on have stopped the seizers for now.

Today my brother and his wife met the neurologist and the recommendation after presenting her case to a team of neurologists and surgeons is continued on the meds until they stop working and then do surgery.

Being on meds means she could never drive and they will likely stop working at some point. Surgery carries its own risks.

Like to hear from anyone that has experience with this.

I have no experience with this and was not even sure what it was. This is the article I read.

https://www.epilepsy.com/learn...t%20of%20the%20brain.

I am so sorry to hear this, I will pray for a successful treatment for your niece.

quote:

Being on meds means she could never drive and they will likely stop working at some point.

^^^^^^^^^^
I am not a pediatric neurologist. The article posted is a good reference. I do know a considerable amount about epilepsy and complex medical problems. There are many more drugs for seizures than in the past. Secondly, before considering neurosurgery get a second opinion from a major academic institution, the Cleveland Clinic, Mayo Clinic etc. Vagus nerve stimulation works well for some patients. As far as driving is concerned, one must be seizure free for one year. Some seizure meds can be sedating so that would be a consideration as well.
Perhaps the most important is to get a pediatric epilepsy specialist who is empathic and optimistic. Hope this helps.