Best wishes for your son and your family. Prayers are out for all.

In addition to well wishes, I am grateful for modern medicine. Despite the management of today's medical industry, I'm grateful for the amazing advances in modern medicine.

Black ai hope your son and the rest of your family come through this with flying colors.
Prayers sent…

quote:

Originally posted by P-220:
Black, I will keep you and your family in my prayers.

If you are at CCHMC, please let me know if I can bring you or your Son anything.

Much appreciated!
We’ve got legos, puzzles, and his switch so I think we’re covered.
He just finished up some pizza which will be his last meal for like 72 hours.

Prayers for you and your boy and the whole family. Wish you all the best of luck and finding the answers that you seek.

Prayers for you son and hoping you get some good answers. Start planning his next meal.

Praying for your son and the rest of your family, Black. I know you've mentioned this before and have been dealing with it for a while. I've got blood sugar issues of my own, and there have been times on bad days when I get frustrated that I've thought of your situation and reminded myself how much worse this would be if it was one of my kids. I feel for you guys. Prayers for strength for your little guy and for insight for the docs that they can find some answers. Take care of yourself, too...all that driving back and forth and being apart from family is going to make for a tough 10 days. Hopefully this gives them what they need to put together a successful treatment plan!

Prayers out to your son, you, your family, and the medical team. Nothing but positive thoughts for a great outcome!!

Thoughts and prayers for your son and family.

Get to go home today!!!
They got what they needed. His blood sugar dropped to 41 last night.
He was completely out of it (to be expected for having such critical low blood sugar).

Just waiting for the Doctors to come through to let us know what this means and where we go from here.

He had a nice big breakfast after 60 hours with no food and due to a mix up in his orders the first 36 hours of this last 60 fasting test he was even restricted from having water!
36 hours stuck in a tiny hospital room with zero food or liquid, then the remaining 24 with ice water only.
Tough little guy barely complained about being hungry.

His blood sugars are now in the 200s with glucogone and a bunch of food in his system.

Hopefully we can get on a good track for further care.
Have to come back up Friday for his neurology appointment but that is fine just glad to go home.

Mama has stayed the whole time at the hospital so little sleep. I have bounced between home and here during the day to get our other boys to basketball, soccer, and Mass.
Getting home to our own beds will be nice.

Hopefully this is a large step closer to getting him sorted out.

That’s great news Black!
I hope this journey doesn’t have too many potholes on the road.
Kneemail sent!

That’s good to hear. Still praying that it gets figured out.

Great news! Glad your stay was cut short, hoping more good on the way.

quote:

His blood sugar dropped to 41 last night.

Wow, that's rough . I'm glad they were able to get the data they needed and that you guys get to go home, though. Will continue to pray for wisdom going forward!

Glad they are able to get the data they feel they need to move forward. What a trooper.

Most of the labs have all come back normal.
Still a few outstanding but at this point I am doubting it will show anything.

All the doctors agree this should not be happening but no one can seem to pinpoint why.

The hospital charges have started rolling in and we have already surpassed $50,000!!!!
I am guessing we’re looking at footing $10,000 maybe more by the time we are done.
Man that stings especially to have no answers.

Dangitall man, I’m really frustrated for you all! Your family will be in our prayers, and I’ll get our kiddos in on it too; they seem to have a direct line to “The Big Guy”! I’m pretty sure He hears and answers their prayers WAY more often than my own!

Prayers to your family.

Best wishes for your son and his recovery. Hang in there.

I'm real sorry to hear the last update. I wish your little man the best, and hope answers come soon. You've got friends here, if it's any help at all.