SIGforum.com Main Page The Lounge My 2.5yr old grandson has Stage 4 Cancer Update 3-15-21 Pg18. Was cancer free for 6 months, Cancer has returned, Beat cancer a second time!
Main Page The Lounge My 2.5yr old grandson has Stage 4 Cancer Update 3-15-21 Pg18. Was cancer free for 6 months, Cancer has returned, Beat cancer a second time!Go | New | Find | Notify | Tools | Reply | |
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Best wishes for your family. End of Earth: 2 Miles Upper Peninsula: 4 Miles | |||
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Mark1Mod0Squid |
Well, there is good news but not yet great news. Titus currently has 2 neuroblastoma lesions. One on 6th right rib and another on his left femur. He was back in treatment with outpatient chemo in Apr-Jun. Mid July it was discovered that the lesions were getting larger by about 20% so a different course of chemo was undertaken. This protocol included 4 rounds of inpatient (5 days each) chemo followed by radiation therapy, immunotherapy and stem cell transplants. The kicker is that they want him to go to either Seattle Children's or Sloan Kittery New York for the immunotherapy & stem cell transplants. Seattle is out of the question due to flying. They can drive to NY in about 8-9hrs, but NY has a stupid quarantine in place and that even includes my daughter and grandson who have both had negative covid tests. One of the other parents and their child from the same hospital in VA was turned around at the airport with an appointment to Sloan Kittery last month. So at this time she is trying to work a schedule with her mother-in-law in Rochester NY to do her 14 day quarantine there then down to NYC for the treatment. As it stands the prognosis is "get to the next step & go from there". Thank all for keeping Titus in your prayers. _____________________________________________ Never use more than three words to say "I don't know" | |||
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Be polite, be professional, but have a plan to kill everybody you meet. |
All continue to be in my prayers... Thom "Tulta munille!" NRA Benefactor Life Member NRA Certified Instructor NRA Range Safety Officer SAF Life Member | |||
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Altitude Minimum |
Prayers for Titus. Are there no other locations for treatment? | |||
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| Mark1Mod0Squid |
My limited understanding is that there are various places within the children's cancer network that specialize in a particular treatment based on a metric but ton of DNA markers. No one hospital can possibly contain all of the different treatments so they have the patient go where the home oncologist recommends based on those genetic DNA factors. _____________________________________________ Never use more than three words to say "I don't know" | |||
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| Altitude Minimum |
Understand. Prayers for that little guy! I know he’s a fighter... | |||
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| Green grass and high tides  |
Thanks for the update D. Prayer sent for him and all that love and care for him. Godspeed and good health little man! "Practice like you want to play in the game" | |||
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| Flying Sergeant |
Prayers sent | |||
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| Eschew Obfuscation |
We will be keeping Titus in our prayers. _____________________________________________________________________ “One of the common failings among honorable people is a failure to appreciate how thoroughly dishonorable some other people can be, and how dangerous it is to trust them.” – Thomas Sowell | |||
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| Big Stack |
It's Memorial Sloan Kettering. There's a Ronald MacDonald house nearby that might be useful in this situation if you need somewhere to stay. And to be blunt, no one is even trying to enforce the quarantine requirements.
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Titus will stay in my prayers til he is well. Thank you for the update. | |||
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Member |
Prayers sent. Retired Texas Lawman | |||
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Prayers for him and your family, Spunk | |||
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| Too soon old, Too late smart |
If you're entering NYS via car and on your way to Sloan Kettering, there is no reason to be concerned about the quarantine. _______________________________________ NRA Life Member Member Isaac Walton League I wouldn't let anyone do to me what I've done to myself | |||
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| Mark1Mod0Squid |
Been a while since I updated. My grandson Titus, a little badass warrior, has beat cancer for the 2nd time! Fuck you cancer, you can't have this one, he is too damned hard core for you! _____________________________________________ Never use more than three words to say "I don't know" | |||
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always with a hat or sunscreen |
Outstanding news! Certifiable member of the gun toting, septuagenarian, bucket list workin', crazed retiree, bald is beautiful club! USN (RET), COTEP #192 | |||
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| Member |
Thanks for the excellent report. Continued prayers for all!!!! I'm alright it's the rest of the world that's all screwed up! | |||
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That is awesome! The "Boz" | |||
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| Member |
Thats wonderful!!!! ------------------------------------------------------------------------------------------- Live today as if it may be your last and learn today as if you will live forever | |||
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| Little ray of sunshine  |
Good news. and glad to hear it. The fish is mute, expressionless. The fish doesn't think because the fish knows everything. | |||
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SIGforum.com Main Page The Lounge My 2.5yr old grandson has Stage 4 Cancer Update 3-15-21 Pg18. Was cancer free for 6 months, Cancer has returned, Beat cancer a second time!
Main Page The Lounge My 2.5yr old grandson has Stage 4 Cancer Update 3-15-21 Pg18. Was cancer free for 6 months, Cancer has returned, Beat cancer a second time!© SIGforum 2024