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My 2.5yr old grandson has Stage 4 Cancer Update 3-15-21 Pg18. Was cancer free for 6 months, Cancer has returned, Beat cancer a second time!
June 10, 2019, 08:05 AM
TMatsMy 2.5yr old grandson has Stage 4 Cancer Update 3-15-21 Pg18. Was cancer free for 6 months, Cancer has returned, Beat cancer a second time!
Lots of super heroes in this story. Happy for Titus and the entire family.
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despite them
June 10, 2019, 09:15 AM
BeancookerThat is some amazing news to start my day! I’m so happy everything is going so well.
God Bless!
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Originally posted by parabellum: You must have your pants custom tailored to fit your massive balls.
The “lol” thread June 21, 2019, 01:18 PM
SigoliciousThis has been a long road. Still more to go, but it is our road to walk and we are walking it. I appreciate all those who have made the choice to walk this road with us.
My Grandson and Daughter are and will forever be my inspiration to be a better me.
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Titus update!
So we’ve been in the hospital for over a week now with the next step in treatment, stem cell transplant! Last Tuesday he had another semi-permanent IV placed, called a Hickman line and Wednesday he started some super high dose chemo for six days. He and I were both isolated for a few days so that was really hard but he was able to get out of the room this last weekend. Wednesday was the big day for the transplant and everything went perfectly well. He received his own stem cells that were harvested back in March. What this process does is the chemo wipes out his blood cell factories in his bone marrow and the stem cells are used to rescue his body and restore proper factories so his body won’t produce the neuroblastoma cells anymore.
Titus hasn’t eaten much since Monday so we opted to place an NG tube to help supplement his nutrition. Because of the chemo and the lack in nutrition, he’s been laying down and watching a lot of tv but he’s handling it better than I would. Hopefully, he’ll start feeling much better with the supplemental nutrition and we can start playing again!!
This will end up being the longest stay to date, with us projected to be here a month. God has already worked on our boy so hopefully, He works His miracles again and we can go home sooner than anticipated.
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Never use more than three words to say "I don't know"
June 21, 2019, 01:53 PM
Jimbo54That picture breaks my heart. God bless you and his caregivers. Prayers coming your way for a full and quick recovery for Titus.
Jim
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"If you can't be a good example, then you'll have to be a horrible warning" -Catherine Aird
June 21, 2019, 02:50 PM
GT-40DOCThat picture just made my monitor screen go very foggy!! God bless that little boy....please!!
June 21, 2019, 10:10 PM
SSgt USMC/VetMay God bless Titus for a speedy recovery. You young man are in our prayers.
June 21, 2019, 10:17 PM
techguyI prayed for you guys not thirty minutes ago when my wife was going to sleep for the night. You guys are always in my prayers.
June 21, 2019, 10:45 PM
Yanert98Prayers for your family.
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"If you are not prepared to use force to defend civilization, then be prepared to accept barbarism.." - Thomas Sowell
June 21, 2019, 10:47 PM
sjamesI can't imagine what that little guy has gone through. I hope and pray that, a year from now, your family will be able to look back on this hard journey and feel great hope at how far you've come.
I'm praying for that little guy tonight.
June 22, 2019, 07:02 AM
SilentPrayers sent.
Silent
June 22, 2019, 07:26 AM
Dreamerx4Out of curiosity, Where is the treatment taking place, UVA? I may have missed.
I live in Berryville, about an hour from DC, close to Winchester. We have extra rooms if it would help for visiting, etc. you are welcome as is your family if we can help.
Praying for your family.
Doug
June 22, 2019, 09:40 AM
SigoliciousThank you all for your kind words and keeping Titus and our family in your prayers. This is a battle where all the support is cumulative and there is no such contribution that is to little or to great.
techguy, you and your family are always in my prayers and on my mind regularly. It's a struggle, but we walk the road together.
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Originally posted by techguy:
I prayed for you guys not thirty minutes ago when my wife was going to sleep for the night. You guys are always in my prayers.
Dreamerx4, the treatment is being done at Children's Hospital of the Kings Daughters.
https://www.chkd.org/They have an excellent cancer program and the staff is awesome. There is a chance that when it comes time for radiation therapy they me go to Johns Hopkins in Baltimore. If that is the case we are lucky to have family close in both Bethesda MD. and Walkersville MD., otherwise if there is a need we will keep your offer on the plate. Your gesture of inviting us to home and family is restorative to my heart. Thank you.
quote:
Originally posted by Dreamerx4:
Out of curiosity, Where is the treatment taking place, UVA? I may have missed.
I live in Berryville, about an hour from DC, close to Winchester. We have extra rooms if it would help for visiting, etc. you are welcome as is your family if we can help.
Praying for your family.
Doug
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Never use more than three words to say "I don't know"
June 22, 2019, 10:23 AM
sig sailorI can hardly look at that picture, I can't even imagine what it must be like for your family. God bless you all!
Rod
"Do not approach a bull from the front, a horse from the rear, or a fool from any direction." John Deacon, Author
I asked myself if I was crazy, and we all said no.
July 04, 2019, 10:00 PM
SigoliciousOur little superhero busted out of the hospital yesterday and got to spend time at the beach today and is watching the fireworks celebrating the birth of the greatest nation the world has ever known!
Chemo #6 and first stem cell therapy are in the books!
From my daughter.......
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❣️Titus Update❣️
After 22 days in the hospital, we were able to break Titus out yesterday!! We spent the day on the beach today and of course, fireworks tonight!
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Never use more than three words to say "I don't know"
July 04, 2019, 10:09 PM
V-TailA great July 4th!
The little dude rocks!
הרחפת שלי מלאה בצלופחים July 04, 2019, 10:23 PM
BeancookerSo happy to see him out enjoying the 4th! You all will be in our prayers as usual.
quote:
Originally posted by parabellum: You must have your pants custom tailored to fit your massive balls.
The “lol” thread July 04, 2019, 10:25 PM
spunk639There are a lot of prayers going upstairs, and I think the big man is hearing them, the little hero has some Angels pulling for him, God Bless him and your family,
My Prayers
Spunk
July 04, 2019, 10:43 PM
adorIts really great he get to spend 4th of July outside. I’m sure he enjoyed it. Praying for his fast recovery. Happy 4th to all of you.
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P228 - West German
July 04, 2019, 10:48 PM
tatortoddGo Titus! Great news on getting out of the hospital and enjoying the 4th at the beach.
Ego is the anesthesia that deadens the pain of stupidity
DISCLAIMER: These are the author's own personal views and do not represent the views of the author's employer. July 05, 2019, 07:52 AM
irreverentSo very glad he got outside to enjoy a day at the beach. Happy 4th, little one.
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"Trust, but verify."