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Why do doctors feel they have to change things when you’re doing well? Login/Join 
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Backstory…I’ve been a heart failure patient for years. At the low point, ejection fraction was 35% with PVCs hovering @ 30%. Cardiologist switched me from Lisinopril to Entresto a few years back. 6 months later PVCs are at zero and EF increased to 40%. I felt great the last few years and all testing showed I should.

My cardiologist retired and the new gal suggested I go to their heart failure clinic. I thought why not? I could learn more about proper exercise and diet. So, the first thing the clinic guy does is add Aldactone and Jardiance. He says standard practice in my case. I told him I’ve been a patient of this heart group for over 10 years. If its standard practice, why am I just hearing about it now?

He says, “I don’t know.”

This was 4 weeks ago. I wake up with a headache every day and have to pee every hour including overnight. Sent a note to the clinic doc yesterday letting him know that Jardiance is in the trash and Aldactone will join it if I don’t feel better by Monday. And please cancel my follow-up appt.

Why do they do this? I was doing great! Is pharma payola still a thing?


____________
Pace
 
Posts: 861 | Location: in the PA woods | Registered: March 11, 2013Reply With QuoteReport This Post
Spread the Disease
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My endocrinologist did this a bit. My cholesterol was in the green. No issues. She still prescribed me a statin as a "preventative measure".

Nope. They are sitting untouched in my cabinet. I'm not taking shit (especially that may have side effects) unless there is a reason. The best preventative measure to stay in the green for this issue is to not eat shit all the time.


________________________________________

-- Fear is the mind-killer. Fear is the little-death that brings total obliteration. I will face my fear. I will permit it to pass over me and through me. And when it has gone past me I will turn the inner eye to see its path. Where the fear has gone there will be nothing. Only I will remain. --
 
Posts: 17746 | Location: New Mexico | Registered: October 14, 2005Reply With QuoteReport This Post
His diet consists of black
coffee, and sarcasm.
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I thought Jardiance was a "diabeetus" drug. Confused That's what the endless obnoxious commercials say. You don't mention diabetes. What does that have to do with heart failure?

quote:
Sent a note to the clinic doc yesterday letting him know that Jardiance is in the trash …


 
Posts: 29039 | Location: Johnson City, TN | Registered: April 28, 2012Reply With QuoteReport This Post
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quote:
Originally posted by egregore:
I thought Jardiance was a "diabeetus" drug. Confused


Additionally approved for heart failure in 2021. And yea, no green taint for me thanks.


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Pace
 
Posts: 861 | Location: in the PA woods | Registered: March 11, 2013Reply With QuoteReport This Post
His diet consists of black
coffee, and sarcasm.
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^^^ Talk about the cure being worse than the disease.
 
Posts: 29039 | Location: Johnson City, TN | Registered: April 28, 2012Reply With QuoteReport This Post
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My endocrinologist reduced my metformin dose by 1/3 and encouraged me to reduce the insulin by 25 percent over time. We had a long talk, and she explained that metformin, when used long term in high doses, can contribute to dementia. The insulin was reduced to stop my blood glucose from dropping overnight. I never change a med unless we have a long talk about it and with specific reasons for the change.
 
Posts: 17317 | Location: Lexington, KY | Registered: October 15, 2006Reply With QuoteReport This Post
Prepared for the Worst, Providing the Best
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quote:
Originally posted by flesheatingvirus:
My endocrinologist did this a bit. My cholesterol was in the green. No issues. She still prescribed me a statin as a "preventative measure".

Nope. They are sitting untouched in my cabinet. I'm not taking shit (especially that may have side effects) unless there is a reason. The best preventative measure to stay in the green for this issue is to not eat shit all the time.


They tried to do that to me, too. I refused. My cholesterol is still fine.
 
Posts: 9551 | Location: In the Cornfields | Registered: May 25, 2006Reply With QuoteReport This Post
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The simple solution is to have a discussion with your doctor. I doubt this is about pharma kickback. There are individual differences with drugs. Part of the problem is getting your information from TV ads.
 
Posts: 17695 | Location: Stuck at home | Registered: January 02, 2015Reply With QuoteReport This Post
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quote:
Originally posted by ZSMICHAEL:
Part of the problem is getting your information from TV ads.


Sorry, I don't get your inference with this comment. It's very simple. I felt fine without the new drugs. I felt crappy with them. TV had nothing to do with it.


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Pace
 
Posts: 861 | Location: in the PA woods | Registered: March 11, 2013Reply With QuoteReport This Post
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My brother had a stroke some years ago. He recovered pretty well. Since all that required doctors, doctors did what doctors do, screw around with things by prescribing lots of pills. I believe it was his cholesterol med that was practically killing him but he went weeks thinking it was a digestive problem from his stroke causing him to use too much hot sauce or bad food. He cut it all out except blood pressure meds but he should be something for diabetic symptoms.


“That’s what.” - She
 
Posts: 422 | Location: Kentucky | Registered: June 06, 2021Reply With QuoteReport This Post
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quote:
Sorry, I don't get your inference with this comment. It's very simple. I felt fine without the new drugs. I felt crappy with them. TV had nothing to do with it.

^^^^^^^^^^
You sure took this personally. If you look at the posts above yours you will see the reference to TV pharma ads.
 
Posts: 17695 | Location: Stuck at home | Registered: January 02, 2015Reply With QuoteReport This Post
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quote:
Originally posted by pace40:
Backstory…I’ve been a heart failure patient for years. At the low point, ejection fraction was 35% with PVCs hovering @ 30%. Cardiologist switched me from Lisinopril to Entresto a few years back. 6 months later PVCs are at zero and EF increased to 40%. I felt great the last few years and all testing showed I should.

My cardiologist retired and the new gal suggested I go to their heart failure clinic. I thought why not? I could learn more about proper exercise and diet. So, the first thing the clinic guy does is add Aldactone and Jardiance. He says standard practice in my case. I told him I’ve been a patient of this heart group for over 10 years. If its standard practice, why am I just hearing about it now?

He says, “I don’t know.”

This was 4 weeks ago. I wake up with a headache every day and have to pee every hour including overnight. Sent a note to the clinic doc yesterday letting him know that Jardiance is in the trash and Aldactone will join it if I don’t feel better by Monday. And please cancel my follow-up appt.

Why do they do this? I was doing great! Is pharma payola still a thing?


It is concerning to hear about sudden changes in your medications and the resulting side effects. It is important to maintain open communication with your medical team and understand the rationale for any new treatments that are recommended. Your comfort and well-being are always our top priority. Therefore, it is important to discuss your concerns with your doctor and explore other options.


___________________________________________________

in the 'Merica Navy they teach you to go pew pew pew...
Luckily in the PNW they taught me to go BANG BANG BANG
 
Posts: 105 | Registered: November 02, 2014Reply With QuoteReport This Post
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quote:
Originally posted by ZSMICHAEL:

You sure took this personally. If you look at the posts above yours you will see the reference to TV pharma ads.


Nope, not personally at all. Since you mention pharma kickback, I thought you were addressing my OP. Corrected I stand.

This message has been edited. Last edited by: pace40,


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Posts: 861 | Location: in the PA woods | Registered: March 11, 2013Reply With QuoteReport This Post
Thank you
Very little
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New SOP is to google any new prescribed drug and read up on it's advantages and issues. I've had two doctor prescribe medications for BP with severe reactions, gout and chronic cough, sparing the details, my research brought to their attention the problem and we changed meds. Not until after the reactions were treated as separate from the BP meds, I had to research it to show them what was causing the issues.

So far both medications being eliminated fixed the underlying reactions.

Read the information, google the drug, read about what it does and what it side effects can be, no matter how little the pct. You could be one of those people with the side effect.
 
Posts: 24650 | Location: Gunshine State | Registered: November 07, 2008Reply With QuoteReport This Post
אַרְיֵה
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quote:
Originally posted by HRK:

New SOP is to google any new prescribed drug and read up on it's advantages and issues. I've had two doctor prescribe medications for BP with severe reactions, gout and chronic cough
Yup. I was taking Lisinopril for BP. Had a persistent dry cough. The Google said that this was a known side effect for some patients.

Send an email to my doc. He replied, telling me to discontinue the Lisinopril and attached an Rx for Losartin to his email. Cough was completely gone in a week or two. Bonus: BP numbers are now way better than they were with Lisinopril.



הרחפת שלי מלאה בצלופחים
 
Posts: 31693 | Location: Central Florida, Orlando area | Registered: January 03, 2010Reply With QuoteReport This Post
goodheart
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Yeah, the chronic cough was lisinopril, the gout probably hydrochlorothiazide or chlorthalidone.

BTW I had my PCP switch me from allopurinol to febuxostat (Uloric) a couple of years ago after I sent him some articles about benefits of febuxostat. It dropped my urine uric acid levels to near zero, and I've had no gout symptoms; also probably decreased risk of recurrent kidney stones.

The proper reaction to concern about changes in medications is to ask to talk to the doctor about it. Aldactone has been shown to improve outcomes for CHF, but it's not for everyone.

Here's what Wikipedia says:

quote:
While loop diuretics remain first-line for most people with heart failure, spironolactone has shown to reduce both morbidity and mortality in numerous studies and remains an important agent for treating fluid retention, edema, and symptoms of heart failure. Current recommendations from the American Heart Association are to use spironolactone in patients with NYHA Class II-IV heart failure who have a left ventricular ejection fraction of less than 35%. [38]


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Posts: 18616 | Location: One hop from Paradise | Registered: July 27, 2004Reply With QuoteReport This Post
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Well, it was definitely Jardiance causing the issues. After stopping it, back to my normal one pee break overnight and the headache and brain fog are gone.

But...back to original question. Why do doctors have to fuck with things if you're doing well? I display no heart failure symptoms except what shows up on echos. No shortness of breath, no fluid retention. O2 sat is steady at 99%. Great BP. Last 3 echos were the same. Nuclear stress test confirmed the echos. Nothing. I'm certainly not going to run a marathon, but I didn't do that when I was 25 either.

Why not just say, "Hey, you're doing great! Keep doing what you're doing. See you next year. Call if you have any issues."

I guess I should say some doctors because my last two cardiologists did exactly that.

Is it because they feel they're not doctoring unless they DO something?

This message has been edited. Last edited by: pace40,


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Posts: 861 | Location: in the PA woods | Registered: March 11, 2013Reply With QuoteReport This Post
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quote:
Originally posted by pace40:
Well, it was definitely Jardiance causing the issues. After stopping it, back to my normal one pee break overnight and the headache and brain fog are gone.

But...back to original question. Why do doctors have to fuck with things if you're doing well? I display no heart failure symptoms except what shows up on echos. No shortness of breath, no fluid retention. O2 sat is steady at 99%. Great BP. Last 3 echos were the same. Nuclear stress test confirmed the echos. Nothing. I'm certainly not going to run a marathon, but I didn't do that when I was 25 either.

Why not just say, "Hey, you're doing great! Keep doing what you're doing. See you next year. Call if you have any issues."

I guess I should say some doctors because my last two cardiologists did exactly that.

Is it because they feel they're not doctoring unless they DO something?

Speaking as a medical professional we get pressured by patients frequently to “do something” and often, when things are on the edge ( doing ok but not great) we get bad reviews that “ I went to the doctor and he didn’t do anything for me”
As medical professionals we are compelled to make an effort to optimize a patients condition. A dammed if you do dammed if you don’t situation
 
Posts: 3436 | Location: Finally free in AZ! | Registered: February 14, 2003Reply With QuoteReport This Post
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quote:
Originally posted by Fredward:
My endocrinologist reduced my metformin dose by 1/3 and encouraged me to reduce the insulin by 25 percent over time. We had a long talk, and she explained that metformin, when used long term in high doses, can contribute to dementia. The insulin was reduced to stop my blood glucose from dropping overnight. I never change a med unless we have a long talk about it and with specific reasons for the change.


Wait, what? Metformin itself reduces the risk of dementia. Stopping or reducing metformin increases your risk of dementia by like 20%!


... Chad



http://shotworkspro.com - Much better than scrap paper!
 
Posts: 786 | Location: Colorado Springs, CO | Registered: December 14, 2009Reply With QuoteReport This Post
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