When my son turned 5 I put together a gmail account using his name. In the beginning I sent a ton of emails to the account, now I send during significant events, when I had to make a decision he did not like, when he got a car, fun stuff, etc. The password to the account is in my will. Consider doing the same with your daughters. I promise it will move them not only when you pass, but for a life time.

Interesting concept there, I like it.

BTW, UCHealth just called and I have to attend Cancer Camp tomorrow.
I have already done this once, but have to do this each time treatment changes is my guess.
Then, perhaps as early as late next week, I begin infusion of the Opdivo drug.
Apparently the infusion takes less than an hour and it's every 14 days.

What happens at cancer camp?

Get to bring your guns and eat smores?

Somehow cancer camping sounds less fun than regular camping.

Back in my stupid years we used to bring a pack of smokes on campouts for around the fire. I don't suppose its that kind of camping either....

Jokes aside, I'm praying this new infusion makes a difference. You stated earlier that all of this treatment is for your family. It isn't a small thing. It's big deal to them that they have the knowledge that you fought to be with them. I've helped a few families in loss. Knowing that the loved one tried everything they had power over to be with them as long as possible really made a big difference in the grief process for them.

As others have said, thank you for sharing this experience with us. I really hope we're bringing some comfort. I can't possibly know what it's like, but your sharing helps me to help others better. Thank you.

quote:

Originally posted by AKSuperDually:
It's big deal to them that they have the knowledge that you fought to be with them. I've helped a few families in loss. Knowing that the loved one tried everything they had power over to be with them as long as possible really made a big difference in the grief process for them.

I hadn't precisely looked at it that way. I think it rings true.

Cancer Camp... I have a good mind to wear short pants and a beanie. Maybe even step off a short bus as we arrive.

It's not much, it's basically a handout to read and a private session with a nurse to explain what will be happening, both the treatment and potential side effects.
In a nutshell, Cancer Camp is patient education.
However, it does seem like they are tailored for the lowest common denominator.

quote:

Originally posted by lbj:
In a nutshell, Cancer Camp is patient education.
However, it does seem like they are tailored for the lowest common denominator.

I think it's kept rather basic due to the fact that the "Campers" are already trying to drink from a fire hose, there's so much that is already still being absorbed that it must be almost overwhelming. So, why complicate a thing with more facts, you know?

What happens in Cancer Camp
Stays in Cancer Camp

quote:

Originally posted by lbj:
What happens in Cancer Camp
Stays in Cancer Camp

That was our motto also....

I am praying that the title of this thread will have "(good news update page XX)" added later.

quote:

Originally posted by lbj:
Unless of course I am dancer.

https://www.bing.com/videos/se...2411FB7EF3&FORM=VIRE

Excellent.

Godspeed in your journey, wherever it takes you.

quote:

Originally posted by lbj:

And thank God I finally have the family I always wanted. I haven't had them very long, but they mean everything.

Damn right.

I had missed the more news update earlier in the week while traveling. Certainly pulling for you to have as good an outcome and time with your family as possible.

Very sad story, but you seem to be dealing as well as anyone could and have the support of both your real family as well as the virtual one!

I wish you peace and happiness in your journey. God bless you.

It's been a week that I am off all meds until the new one starts Friday.
The good news is that today, the flavor is back.
I just got done grilling and eating a rather fat 80/20 medium rare hamburger with onions and a bun.
Nice Memorial Day surprise.

I'm stuffed and it feels mighty fine.

Got my Hedley holster.

quote:

Originally posted by lbj:
The good news is that today, the flavor is back.
I just got done grilling and eating a rather fat 80/20 medium rare hamburger with onions and a bun.
Nice Memorial Day surprise.

I'm stuffed and it feels mighty fine.

Nice! Hope you and your family have an enjoyable day and the taste buds keep on working.

It was nice to be off the Votrient, as my taste has returned in a big way. It's not 100% but maybe like 80%.

Last Friday, I began the infusion drug Opdivo. This will be every 2 weeks or so.
I was really super tired afterward, but all in all, I feel way better than I did on the Votrient. The Opdivo can affect taste as a side affect, but less so than Votirent, so we will wait and see.

Forward we go, I guess.

quote:

Originally posted by lbj: 80/20 medium rare hamburger with onions and a bun.

Raw onions, I hope. As God intended. Good for the body. Good for the soul.

quote:

Forward we go, I guess.

That's right. Forward. Opdivo straight or in combination?

Absolutely positively raw white onions.

lbj, Sir you are and have been in my prayers.

quote:

Originally posted by lbj:

quote:

Originally posted by AKSuperDually:
It's big deal to them that they have the knowledge that you fought to be with them. I've helped a few families in loss. Knowing that the loved one tried everything they had power over to be with them as long as possible really made a big difference in the grief process for them.

I hadn't precisely looked at it that way. I think it rings true.

Cancer Camp... I have a good mind to wear short pants and a beanie. Maybe even step off a short bus as we arrive.

It's not much, it's basically a handout to read and a private session with a nurse to explain what will be happening, both the treatment and potential side effects.
In a nutshell, Cancer Camp is patient education.
However, it does seem like they are tailored for the lowest common denominator.

Interesting how different systems do things different ways.

Texas Oncology had you meet with the oncologist(s) who was treating you who then went over that with you. In fact it wasn't just when the treatment changed, but it happened before every round to ensure that you are tolerating it well.