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I believe in the
principle of
Due Process
Picture of JALLEN
posted
A hs classmate missed the picnic last month. He said doctors had discovered a couple of “masses on his brain.”

We now have the word that it is likely glioblastoma.

Isn’t this what Sen. McCain supposedly has?

What does the future hold? Cureable?




Luckily, I have enough willpower to control the driving ambition that rages within me.

When you had the votes, we did things your way. Now, we have the votes and you will be doing things our way. This lesson in political reality from Lyndon B. Johnson

"Some things are apparent. Where government moves in, community retreats, civil society disintegrates and our ability to control our own destiny atrophies. The result is: families under siege; war in the streets; unapologetic expropriation of property; the precipitous decline of the rule of law; the rapid rise of corruption; the loss of civility and the triumph of deceit. The result is a debased, debauched culture which finds moral depravity entertaining and virtue contemptible." - Justice Janice Rogers Brown
 
Posts: 47950 | Location: Texas hill country | Registered: July 04, 2005Reply With QuoteReport This Post
10mm is The
Boom of Doom
Picture of Fenris
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My understanding is that the outlook for glioblastoma is extremely bleak.




The budget should be balanced, the Treasury should be refilled, public debt should be reduced, the arrogance of officialdom should be tempered and controlled, and the assistance to foreign lands should be curtailed lest Rome become bankrupt. People again must learn to work, instead of living on public assistance. ~ Cicero 55 BC

The Dhimocrats love America like ticks love a hound.
 
Posts: 16232 | Location: Northern Virginia | Registered: November 08, 2008Reply With QuoteReport This Post
Irksome Whirling Dervish
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It is 100% fatal and by the time it's discovered, typically like pancreatic cancer, the outcome is certain.

Ted Kennedy had the same thing as your classmate and McCain. I think the survival rate for 2 years from typical diagnosis is near zero. It's a nasty one.
 
Posts: 3040 | Location: "You can't just go to Walmart with a gift card and get a new brother." Janice Serrano | Registered: May 03, 2005Reply With QuoteReport This Post
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All of the above are correct. Treatment is palliative only.
 
Posts: 3749 | Location: MS GULF COAST | Registered: January 02, 2015Reply With QuoteReport This Post
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My father had a Grade 4 Glio. Took him from perfect health to the grave in 10 months. (and that was after surgery, chemo and radiation). It was a very ugly 10-months.

There is no documented cure and no documented cases of survival outside of the trials being held at Duke Medical where a surgeon/professor is inserting deconstructed polio viruses directly into the tumor/mass and allowing the person's natural immune defenses to destroy the tumor in pursuit of the virus. Results thus far look promising.

To be honest - I should not have let my dad go through chemo or radiation given the already short prognosis for this type of cancer.
 
Posts: 2216 | Registered: April 20, 2010Reply With QuoteReport This Post
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My father died from it in 2009. Terrible disease with a bleak outcome. There has been some progress in treatment that shows some promise.

My father also went through radiation and chemo. I think it made the end of his life worse.

Best wishes for your friend and family.
 
Posts: 198 | Location: Canyon Lake, TX | Registered: December 22, 2008Reply With QuoteReport This Post
ammoholic
Picture of drtenb330
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It is an unusually quick and final diagnosis. but, the University of Florida has had some luck with different protocols, and with a specific genotype. Take a look at the link, and some of the more recent articles:

https://braintumors.ufhealth.o...ries-cristina-matos/
 
Posts: 1411 | Location: Miami Beach, Florida | Registered: December 26, 2012Reply With QuoteReport This Post
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Our brother was diagnosed in late Sept 2017. Doctors told him it is terminal and patients generally have about 24-30 months. Brother is involved in an experimental treatment regimen that (they claim) has shown some promise. No illusions about the prognosis, however.

We trudge on.
 
Posts: 70 | Registered: March 10, 2012Reply With QuoteReport This Post
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Duke University has been researching a protocol injecting modified polio virus into the tumors which was having some success as of a year or so ago, I’m not sure if the trial is still going on, but was only open to those who had failed standard therapy.
 
Posts: 1785 | Location: NC | Registered: January 01, 2006Reply With QuoteReport This Post
Knows too little
about too much
Picture of rduckwor
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Not a good diagnosis to give or receive.

RMD




TL Davis: “The Second Amendment is special, not because it protects guns, but because its violation signals a government with the intention to oppress its people…”
 
Posts: 19420 | Location: L.A. - Lower Alabama | Registered: April 06, 2008Reply With QuoteReport This Post
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My sister passed away recently from this. 20 months after diagnosis.
 
Posts: 542 | Registered: June 16, 2012Reply With QuoteReport This Post
An investment in knowledge
pays the best interest
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quote:
Originally posted by Graniteguy:
There is no documented cases of survival outside of the trials being held at Duke Medical


Not quite accurate. Northwest Biotherapeutics, which has a pivotal study underway for its dendritic cell vaccine, has reported a few patients have survived 7 years+ and are in remission thus far (well beyond the norm survival point). Unfortunately, like many terminal illness indications, many that were enrolled in the Ph III study have passed away but median survival appears much improved. I used “appears” b/c the trial’s study design and mgmt could have been improved upon and it’s difficult to extrapolate whether other causative factors are responsible for that clinical endpoint’s value (which is still an interim one as the study continues to progress). The tech may not be a God-send but an interesting approach to address oncogenic drift. Its greatest chance of success may lie in combining it with a check point inhibitor.

Best wishes to your friend and I hope whatever care they seek is in some way beneficial.
 
Posts: 1544 | Location: Mid-Atlantic | Registered: December 27, 2002Reply With QuoteReport This Post
I have not yet begun
to procrastinate
Picture of KMitch200
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Sorry to hear about your pal JAllen.

Friend of mine died either 5 or 7 years after diagnosis w/GBM. There were a few years there where the docs told him after followup MRIs that "you can tell you brain surgery but not why". Sadly, it became obvious again why.
Number of years are better if in your 30's rather than your 60s but still screwed just the same.
The last year was terrible.

The Duke experiment will be a Godsend if they can work it out.


--------
After the game, the King and the pawn go into the same box.
 
Posts: 2821 | Location: AZ - West side of the valley | Registered: October 26, 2006Reply With QuoteReport This Post
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JALLEN- Glioblastoma Multiformae is one nasty form of cancer. I will pray for your classmate.
Having said that, I am a survivor of Stage 4 Glioblastoma. I was destined to die, and the specialists at the Univ of Michigan Medical Ctr., had done the paperwork transferring me to the local Hospice, where I was supposed to die in a month's time or so. But, 2 of the junior Doctors in the Oncology Dept and the Neurosurgery Dept decided to try out a then new( it was in 2000), cancer drug. The chemotherapy was really rough, but after 18 infusions, I began to recover. My cancer is in remission, and I have developed a second, benign brain tumor, but, it looks like I am free of the brain cancer.

None the less, JALLEN, your friend is in my prayers.


If you think you can, YOU WILL!!!!!
 
Posts: 3648 | Location: Wolverine-Land!!!! | Registered: August 20, 2005Reply With QuoteReport This Post
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Just saw a story about a new treatment study for this disease.

https://www.northwell.edu/abou...ent-stays-ahead-tech

This isn't the story I saw on local TV (couldn't find it), but it is the same patient.

Figured it might open an avenue of research for anyone here going through it. Anything that can give someone more life is worth investigating.

(Writing this on the anniversary of the death of my own mother - she did not, however, go of cancer)
 
Posts: 2112 | Location: Northern California | Registered: December 01, 2006Reply With QuoteReport This Post
I believe in the
principle of
Due Process
Picture of JALLEN
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Thanks. I sent it to my buddy. He’s retired Army.

I have no idea what kind of care he might be getting.




Luckily, I have enough willpower to control the driving ambition that rages within me.

When you had the votes, we did things your way. Now, we have the votes and you will be doing things our way. This lesson in political reality from Lyndon B. Johnson

"Some things are apparent. Where government moves in, community retreats, civil society disintegrates and our ability to control our own destiny atrophies. The result is: families under siege; war in the streets; unapologetic expropriation of property; the precipitous decline of the rule of law; the rapid rise of corruption; the loss of civility and the triumph of deceit. The result is a debased, debauched culture which finds moral depravity entertaining and virtue contemptible." - Justice Janice Rogers Brown
 
Posts: 47950 | Location: Texas hill country | Registered: July 04, 2005Reply With QuoteReport This Post
goodheart
Picture of sjtill
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Here's an article on a different new treatment for glioblastoma: poliovirus.

Link: Scientific American: Poliovirus for glioblastoma


_________________________
“Little else is requisite to carry a state to the highest degree of opulence from the lowest barbarism but peace, easy taxes, and a tolerable administration of justice: all the rest being brought about by the natural course of things.”--Adam Smith, born June 16, 1723
 
Posts: 14083 | Location: One hop from Paradise | Registered: July 27, 2004Reply With QuoteReport This Post
I believe in the
principle of
Due Process
Picture of JALLEN
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The lab work came back Stage 4 glioblastoma.

Thanks, doc. I’ll send the new article.




Luckily, I have enough willpower to control the driving ambition that rages within me.

When you had the votes, we did things your way. Now, we have the votes and you will be doing things our way. This lesson in political reality from Lyndon B. Johnson

"Some things are apparent. Where government moves in, community retreats, civil society disintegrates and our ability to control our own destiny atrophies. The result is: families under siege; war in the streets; unapologetic expropriation of property; the precipitous decline of the rule of law; the rapid rise of corruption; the loss of civility and the triumph of deceit. The result is a debased, debauched culture which finds moral depravity entertaining and virtue contemptible." - Justice Janice Rogers Brown
 
Posts: 47950 | Location: Texas hill country | Registered: July 04, 2005Reply With QuoteReport This Post
I believe in the
principle of
Due Process
Picture of JALLEN
posted Hide Post
I just got off the phone with our social director who told me she had gotten the call from the new widow that my classmate has died.

Sure is fast. I believe he first noticed symptoms in February.




Luckily, I have enough willpower to control the driving ambition that rages within me.

When you had the votes, we did things your way. Now, we have the votes and you will be doing things our way. This lesson in political reality from Lyndon B. Johnson

"Some things are apparent. Where government moves in, community retreats, civil society disintegrates and our ability to control our own destiny atrophies. The result is: families under siege; war in the streets; unapologetic expropriation of property; the precipitous decline of the rule of law; the rapid rise of corruption; the loss of civility and the triumph of deceit. The result is a debased, debauched culture which finds moral depravity entertaining and virtue contemptible." - Justice Janice Rogers Brown
 
Posts: 47950 | Location: Texas hill country | Registered: July 04, 2005Reply With QuoteReport This Post
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Sorry to hear of your classmate's death, JALLEN.
 
Posts: 6571 | Registered: January 10, 2009Reply With QuoteReport This Post
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